What is the TRUSTING Users Board?
A ‘Board’ in research, similar to those in healthcare, is a group of patients and caregivers who regularly meet to provide input on ongoing and future research. Researchers can join meetings to discuss topics requiring their perspective. This board helps prioritise patient and clinician experiences, ensuring their insights improve research quality and its application in practice.
In the TRUSTING project, a service users board, called the TRUSTING USERS BOARD (TRUSB) has been established. The TRUSB is a presentative group of (potential) users of the ‘trustworthy AI monitoring tool’.
The User Board aims at build and operate with support from GAMIAN-Europe and The European Psychiatric Association (EPA) and includes individuals with lived experience and clinicians with experience in psychosis treatment. There are activities where clinicians and patient experts have to join forces and work together but also specific tasks that will be performed separate, each within their subgroup:
ROLES AND TASKS
1 | Addressing User Needs and Building Trust in AI-Driven Clinical Applications
During the entire project, the TRUSB will be consulted for addressing and understanding the needs of (potential) users of SLP/NLP (*) technology in clinical applications and to a certain extent convincing end users of technology that capitalises on theoretically motivated, explainable and trustworthy AI.
(*)SLP= Speech and Language Processing. NLP=Natural Language Processing
2 | Co-Designing the RCT
The TRUSB will contribute to the co-design of the Random Clinical Trial (RCT). The RCT, as part of one of Workpackages (WP) in the project, will be co-designed by service users who have experienced psychosis and clinicians who treat citizens with psychosis. Many aspects of the RCTwill be confirmed upon dialogue with the User Board. Outcome measures of the RCT may be adjusted or extended on the initiative of the User Board.
3 | Engaging in Strategic Communication
The TRUSB will also be incentivised to participate in (strategic) communication in the beginning and during the project.
4 | Developing a Multilingual Educational Course for Informed User Engagement
Informed by the user-needs survey, an educational course will be developed in all six languages. The purpose of this course is to educate, motivate and empower participants (and their families and caretakers/support systems) to ensure that they use the relapse predictor. This course will be developed in concert with the TRUSTING User Board and adapted for use across all testing sites. An important goal of this course is to educate participants about the interpretation of test results. The global population has during the COVID-19 pandemic received a “crash course” in issues around testing such as false alarms and their consequences. Even so, participants will be trained to understand the feedback given.
